Announcement of grant round 2017: User engagement and participation in prosthetics and orthotics developments.

PORT-ER grants

2017 Grant Theme: User engagement and participation in prosthetics and orthotics developments.

Closing Deadline 5pm GMT 28 February 2017.

Micro grants £25 – £250.

Professionals and organisations: Our 2017 grant round is about encouraging professionals, services and designers to include prosthetics and orthotics service users in planning, improving or evaluation of developments (services, activities, support, advocacy or products).

Users: Our 2017 grants will also support prosthetic or orthotic user group meetings or social activities. Or perhaps a special meeting is called by an organisation locally, but you are an individual user having to fund your own engagement in that meeting. We would like to help you with that.

This year we are offering “mustard seed” micro grants ranging from £25 to £250. We hope that this will help to encourage small ideas and actions to grow – or simply help users to contribute to bigger projects. Sometimes development is hard to achieve without small costs for local travel or coffee being covered.

For more information see our grants page http://port-er.com/grants

Grants awarded to 3 user groups

We are delighted to announce that PORT-ER has awarded 3 grants in our 2017 Grant round with the theme of “User engagement and participation in prosthetics and orthotics developments”. This year the grant round offered “mustard seed” micro grants ranging from £25 to £250 to encourage small ideas and actions to grow – or simply help users to contribute to bigger projects.

We received 4 grant applications and 3 were successful. One application was rejected because it was not aligned with our charity objectives. With the unanimous agreement of our PORT-ER trustees, the 3 successful awards are as follows:

Edinburgh Limb Loss Association (ELLA) awarded £250 for their re-launch.

Moving Forward (Portsmouth) awarded £250 for help with restarting their amputee charity.

Orthotic and Prosthetic Users Stanmore (OPUS) awarded £250 for their work.

We are delighted to be able to support these projects. Our next annual grant round will be announced in January 2018 with applications possible throughout February 2018. Please note that we do not accept grant applications outwith these dates because we are a small charity working in a voluntary capacity. We welcome any donations and help from fundraisers to grow our 2018 available grant funds.

 

Can you help with a study about walking with a prosthetic leg or if you use an ankle foot orthosis after stroke?

Research participation request: Comparison of biomechanical and muscle activation variables between mobility impaired and unimpaired individuals walking outdoors, indoors and on a treadmill.
Treadmills are used to help people with different medical conditions recover the ability to walk. They are used, for example, in the rehabilitation of stroke survivors and lower-limb amputees. This type of training improves the fitness and the walking speed of the user. However, it doesn’t help as much when it comes to walking around the home environment or outside where individuals face several challenges, such as turns, slopes or obstacles avoidance. A new type of treadmill which adapts its speed to the person’s own speed and change gradient, while projecting a virtual environment, can lead to more variety in walking practice that is closer to a real-life walking experience.

The aim of our study is to investigate how closely this virtual-reality treadmill simulates outdoor walking. We are looking for the help of people who use a lower-limb prosthetic, and people who have been affected by stroke and use a foot-splint or AFO. If you, choose to participate, we will arrange for you to attend a three-hour session at the University of Strathclyde, Glasgow, where you will be monitored while walking outside, inside, and in virtual-reality.

Study recruitment to early August 2017

For more information, please contact: Dr Nicholas Smith at nicholas.l.smith@strath.ac.uk.

Request for participation in a study about spinal cord injury

The Spinal Cord Injury Move More (SCIMM) study

Are you an 18-50 year-old adult with a spinal cord injury T6 to S5?
Heart disease is the leading cause of death in people with spinal cord injury. The Spinal Cord Injury Move More Study is investigating whether breaking up periods of inactivity with very short bursts of exercise over the day helps to reduce risk markers for heart disease.
This study is being run by the University of Bedfordshire. You will be asked to visit the Universities Bedford campus on 4 occasions with all travel expenses paid and you will receive a total of £75 if you finish the study. You will receive feedback on an assessment of your health and a report of the study findings. Please click this link to see the Information Sheet for Participants Spinal Cord Injury.

Study recruitment to October 2018

To express your interest in this study please contact Tom Withers at thomas.withers@beds.ac.uk.

Recruitment for volunteers for study – talking about limb loss

Study title: Talking about limb loss – Development of patient information resources based on “real life” experiences.

Recruitment for volunteers:

Would you be interested in taking part in an interview to discuss your experience of limb loss and prosthesis use?
We would like to produce a series of patient information leaflets giving real life examples of amputation and prosthesis use.
These leaflets would then be distributed via clinics and support groups, as well as being made available online, to help other individuals with this experience. We are looking for individuals with all types of experience so please get in touch!
You must be at least 18 years old, have a lower limb amputation, be a minimum of 6 months post-amputation.
If this is you we would love to hear from you!

Please see our participant Information Sheet – Talking about limb loss study

Study recruitment to 30 September 2017

Please email Rachel Munro at RMunro1@qmu.ac.uk or Dr Clare Uytman at cuytman@qmu.ac.uk, researchers at Queen Margaret University, Edinburgh
Or contact project lead, Dr Clare Uytman on 01314740000 for more information.

 

Research study about myoelectric prosthetic arms

Do you have a myoelectric prosthesis? How easy do you find it to use?

We are looking for adult trans-radial users with a range of experiences to undertake a research study “Understanding the impact of skill, unpredictability and delays on the control of myoelectric prostheses”. This study aims to establish why some people find these devices difficult to control.

What you would be asked to do

PART 1: A series of simple tasks using your myoelectric prosthesis. Time commitment = 1 x 3-4 hour session. Location: University of Strathclyde, Glasgow. Alternative locations in England include: Salford, Manchester, Roehampton, Sheffield or Nottingham. Please contact the researcher for details.

PART 2: Assessment of everyday prosthesis use. Time commitment = 1 week. Location anywhere in the UK. This involves wearing two wristwatch sized sensors during normal daily activity.

for more information about this study please contact Alix Chadwell A.E.A.Chadwell@edu.salford.ac.uk or Supervisor L.P.J.Kenney@salford.ac.uk

The University of Salford, Manchester

Study recruitment to 5 October 2017

Download the PDF Advertisement for research participants Myoelectric prosthesis study

60 Standards for Prosthetics and Orthotics published by WHO

60 Standards for Prosthetics and Orthotics

The World Health Organization has published new Standards for Prosthetics and Orthotics. They are published in 2 parts (Part 1 Standards and Part 2 Implementation Manual).

There are 60 standards in 4 areas (Policy, Products, Personnel and Provision).

Area 1. Policy

Leadership and governance

STAKEHOLDERS AND COORDINATION             

1 Governments should assume a leading role in the development and coordination of national prosthetics and orthotics service provision.

2 Governments should involve all relevant stakeholders – including service users, caregivers and user groups – in policy development, planning, implementation, monitoring and evaluating prosthetics and orthotics services.

3 A national prosthetics and orthotics committee or similar entity, with a wide range of stakeholders, should be in place for the coordination and development of national prosthetics and orthotics service provision.

GUIDING FRAMEWORK FOR PROSTHETICS AND ORTHOTICS SERVICE PROVISION

4 There should be a national guiding framework for prosthetics and orthotics service provision.

5 Prosthetics and orthotics service provision should be regulated by the State.

MONITORING

6 Prosthetics and orthotics service should be monitored nationally and regionally.

INTERNATIONAL COORDINATION AND COOPERATION

7 Governments and national stakeholders should collaborate internationally and share experience, data and research on prosthetics and orthotics service provision.

INTERNATIONAL SUPPORT

8 International support, when provided, should contribute to the establishment and implementation of national prosthetics and orthotics policies and strategic plans and be aligned with the provision system of the national health and welfare service.

Financing

ECONOMIC ANALYSIS OF PROSTHETICS AND ORTHOTICS SERVICE PROVISION

9 The cost of providing prosthetics and orthotics services should be assessed periodically.

10 The direct and indirect economic benefits of prosthetics and orthotics services should be analysed at individual, family, community, society, health sector and national levels.

FUNDING PROSTHETICS AND ORTHOTICS SERVICES

11 Prosthetics and orthotics services should be an integral part of universal health coverage.

12 Prosthetics and orthotics services should be included in national health and social insurance systems, like other health interventions.

Information

13 Data on prosthetics and orthotics service provision should be collected periodically, analysed at service level and shared at national level.

14 A national prosthetics and orthotics database should be established to identify total need, types of need and unmet need.

Promotion of prosthetics and orthotics services

15 Strategies for raising awareness about prosthetics and orthotics services should be established, including rights-based, social and economic arguments.

Area 2. Products

Types

16 An appropriate range of prosthetic and orthotic products should be available in countries to suit local needs and realities.

17 A national list of priority prosthetic and orthotic products should be drawn up, respected and updated regularly.

18 International standards should be used for national classification of prosthetic and orthotic products.

Supply of materials

19 Components, materials, consumables, tools, machines and other equipment used exclusively for fabrication of prosthetic and orthotic products that are not available in a country should be exempt from import duty and customs fees.

20 Reuse of prosthetic and orthotic components should be regulated by a designated authority or group of experts with no conflict of interests and involve proper quality control and documentation.

Technical standard

21 National regulation of prosthetic and orthotic products, components and materials should be an integral part of the national health care regulatory system.

22 Prosthetic and orthotic products should be tested structurally for compliance with ISO or equivalent standards before being sold on the market.

Research and development

23 Clinical and technical research should be conducted in prosthetics and orthotics, and the results should be shared nationally and globally.

24 Affordable prosthetic and orthotic products that are cost–effective, of good quality and context-appropriate should be developed and made widely available.

Area 3. Personnel

Personnel who provide prosthetics and orthotics services

25 Prosthetics and orthotics services should be provided by competent, adequately trained professionals.

26 Complicated prosthetics and orthotics treatment and care of complex cases should be provided by a multidisciplinary team of professionals with complementary skills.

Training in prosthetics and orthotics

CORE PERSONNEL

27 Training in prosthetics and orthotics should be aligned with national and international educational standards.

28 Training in prosthetics and orthotics should be available at various levels to fully meet national needs.

OTHER PERSONNEL

29 Health care professionals, especially rehabilitation professionals, who provide treatment relevant to prosthetics and orthotics services should have adequate knowledge about prosthetics and orthotics.

CONTINUING PROFESSIONAL DEVELOPMENT

30 Continuing professional development should be compulsory in prosthetics and orthotics professional practice.

Planning the prosthetics and orthotics workforce

31 Workforce planning should take into account all the disciplines required in prosthetics and orthotics services at all levels.

32 Prosthetics and orthotics service units should have at least one prosthetist and orthotist to supervise and guide clinical and technical work.

33 A strategy to retain prosthetics and orthotics personnel should be in place.

Professional regulation and recognition

34 Prosthetics and orthotics clinicians should be regulated by the State within regulations for health professionals.

35 Prosthetists and orthotists should assume responsibility for services provided by associate and nonclinical personnel under their supervision.

36 Prosthetics and orthotics personnel should have a clear career structure and employment conditions that are aligned with those of other health care professionals, associates and technical personnel.

Area 4. Provision of services

User-centred service delivery

37 A documented policy to safeguard the rights of users of prosthetics and orthotics services should be in place and in effect, outlining the features of user-centred services.

38 Service users and their representatives should be involved in policy-making, planning, implementing, monitoring and evaluating prosthetics and orthotics services, take part in decision-making at all levels and be represented on relevant committees.

39 Service users should be given the opportunity to choose their service provider and technology, including components and materials, according to their need, among the options available in the country and the limits set for financing or reimbursement.

Systems for delivering services

INCLUSIVE SERVICE DELIVERY

40 Prosthetics and orthotics services should be accessible to all the people who need them: girls, boys, women, men and older adults.

41 Prosthetics and orthotics services should be part of the health sector or be closely linked to it.

42 Prosthetics and orthotics services should be delivered in a three-tier system, at primary, secondary and tertiary levels, with established links and two-way pathways for referral and follow-up.

43 Maintenance and repair services should be an integral part of a prosthetics and orthotics service delivery system.

INCLUSIVE SERVICE DELIVERY IN DISASTER CONTEXTS

44 The provision of prostheses and orthoses in disaster conditions should be an integral part of the health sector response and be planned to ensure a seamless transition to long-term service provision.

Service units

SETTING

45 Prosthetics and orthotics service units should be established within or closely linked to health and rehabilitation service facilities, such as district and referral hospitals.

46 The possibility of integrating prosthetics and orthotics service units into broader services for assistive products should be considered and explored.

INFRASTRUCTURE

47 At all service levels, prosthetics and orthotics units should be designed to ensure effective, efficient, high-quality service provision in a user-friendly, barrier-free, safe clinical environment.

EQUIPMENT

48 Prosthetics and orthotics service providers should define and adhere to a plan for equipment maintenance and replacement.

SAFETY

49 The safety of service providers and users should be ensured by the establishment of documented health and safety regulations.

Service unit processes

THE SERVICE DELIVERY PROCESS

Identification and referral

50 Prosthetics and orthotics service providers should identify and train partners in identifying and referring potential users.

Service delivery 

51 All steps in the delivery of prosthetics and orthotics services should be based on the best available evidence and should adhere to local, national and international standards and practice.

Assessment

52 Service providers should involve service users and caregivers in assessment, setting goals and planning treatment.

53 Peer support and counselling should be available to service users as appropriate.

Fabrication and fitting

54 Prosthetics and orthotics personnel should follow the instructions and guidelines of the component manufacturer and document any deviation from standard practice.             

User training

55 Service users should be given sufficient training to ensure safe, effective use of prostheses and orthoses. Family members and caregivers should be involved as appropriate.

Product delivery and follow-up

56 Users or caregivers should make the final decision about the acceptability of the fit and function of the prosthesis or orthosis.

57 The outcome of prosthetics and orthotics treatment should be evaluated and documented.

58 Prosthetics and orthotics service users should be followed up regularly.

MANAGEMENT

59 Annual and long-term strategic and operational plans should be in place, with performance indicators for continuous monitoring.

60 The required quality should be defined and adhered to at all levels and in all parts of the prosthetics and orthotics service delivery system”.

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The above standards are summarised from:

Eklund A and Sexton S. WHO standards for prosthetics and orthotics. Geneva: World Health Organization; 2017. Licence: CC BY-NC-SA 3.0 IGO.

They can now be downloaded as pdf files in English from the World Health Organization website http://www.who.int/phi/implementation/assistive_technology/prosthetics_orthotics/en/

WHO is printing hard copies and translations to more languages are underway. Progress updates are available via the WHO website.